Heath Update

On (Thursday 7th August 2025) I visited Manchester Royal Infirmary to discuss my recent ECG results with my cardiologist. After checking in, I waited a few minutes before being called in for the routine procedures of having my blood pressure measured and my weight checked. Waiing to see my Cardiologist After these procedures were completed and documented in my medical records, I returned to the waiting room to await my appointment with the cardiologist to discuss the ECG resu

On (Thursday 24th July 2025) I had my 12-month ECG appointment at Manchester Royal Infirmary. we arrived at the hospital and then had to try find where we had to go as we are still unsure of the layout of the hospital once we found where we was going I checked in and just a few minutes after sitting down I get called in to go for my ECG which shows the rhythm of the heart. This only took a couple of minutes, so I then went back to the waiting room and just as we sat down I g

On (Wednesday 25th June 2025) I received a letter in regards to further results from my Genetic Testing, This time is goes into further details about my heart condition stating how it has been caused. I have now been Diagnosed with the following condition "Noonan Syndrome" I made a Subject Access Request a few years ago for all of my medical history and there was a mention of this Noonan Syndrome but also stated I did not have the condition. Now it has been fully confirmed th

On (Friday 14th March 2025) I had an appointment at St Mary's Hospital to have Genetic Testing carried out. This was to find out if my Heart Condition is inherited and can be passed down and because there is also a history of Cancer in the family so I was also tested to see if I carry the Cancer Gene change. I had Bloods taken to be tested and Analyzed. I received a letter today (Friday 4th April 2025) from my Genetics Doctor which mentioned I do NOT carry the family Cancer g

Today (Friday 30th August 2024) I had my Cardio Pulmonary Exercise Test, this was to find out if my shortness of breath was down to my lungs or my heart. My appointment was at 10am I first had to follow a nurse to get my weight and height after this was done I was taken into the room to meet the consultant who would carry out the test he made sure I understood what the test was for and how it would be carried out he explained it all in detail in terms I would understand leavi

Today (Thursday 23rd May 2024) I attended a different hospital to have an ECG Examination with Heart specialists after the ECG was complete I had to go down a floor to meet with the Cardiologist who looked at the ECG results with me in the room. She was very friendly and understanding, she pulled up a heart diagram on her computer and explained in detail what was happening with my heart and valves. She asked if I'll allow them to take over my care which means I'll no longer b

Had a phone call from Cardiology consultant today and from the MRI scan they've found "further" abnormalities stating we already know about the narrowing and leakage of 1 valve which is what we've been monitoring but the MRI has shown the other abnormality with another narrowing and above that is a leakage so because its out of her "expertise" that is why she has referred me to the congenital heart specialist as that's there area of expertise. stating we've found the problem

The MRI Scan Results were not what I expected and did not provide any realistic results further tests have been arranged for a more Specific ECG. Scan of my Heart from MRI Scan

Today (Monday 25th March 2024) I had my Cardiac MRI Scan, this appointment was made by my Cardiologist consultant because on my last ECG Examination they found that my Heart condition had changed from Moderate to Severe.

Today (Monday 20th Nov 2023) I went to my appointment to see my cardiologist to discuss the results of my ECG Examination. They found a change with my heart which has gone from Moderate to Severe. When I arrived at the hospital I booked in and sat down in the waiting room after being there for about 5mins a Doctor came over to take my weight and height measurements I was then told to sit back down in the waiting area a nurse then comes over and asked me to take another ECG Ex

Got a letter from hospital that has been marked "High Priority" as they have found some changes follow-up appointment has been made for 20th Nov 2023. Something has changed from Moderate to Severe but will know more when I attend my appointment this was the earliest date they could give me I am on the short list and if an earlier appointment comes available I'll be given that instead.

My ECG Examination used to be every 2 years but my cardiologist decided to make them every 4 years this will be the first ECG Examination since my last one 2 years ago. As always hoping for good results since nothing has changed throughout the years, I always enjoy being wired up and watching my heart on the Monitor. After my Echo